maybe he/she can help you in some way. Fibromyalgia is a long-term condition that causes pain and tenderness throughout the body. Many also have problems with incontinence (inability to hold urine) and urinary retention (inability to pass urine). Maintaining a log of activities, meals, sleep times and duration, and symptoms of fibromyalgia may help to identify particular triggers. Both of these things can lend a more pungent aroma to your urine. Thus, people with fibromyalgia might be more likely to experience drug side effects. Certain smells, some good some not so good, can completely take over my body and stop me in my tracks, making me so nauseas and my headaches worse. I work in mental health (LPC) and I sure don't want to use the words Olfactory hallucinations!!! Unfortunately it has many different smells. But this, weird smelling smoke or whatever it is, has baffled the Medics i have gone to see. I am trying to think if I've heard of anyone with similar experience, but at the moment I can't. I get this woody ham like smell every now and then. 13. At present I'm laid up in bed with a heavy cold Crickey, thanks so much for replying.! It drives me crazy and find it hard to sleep. I use a lot of Post-it notes and set reminders for just about everything. Bee E. Not being able to process what someone is saying to you and then looking rude for asking what they said more than once because to your brain they may as well be speaking gibberish. Dani S. Definitely the brain fog. and had a 'tree' hung inside it. I try not to eat bread and fatty food and it seem like the smell disappears.. try this remedy and let us know.. A little internet research shows that are a number of people who are facing this issue. Someone with fibromyalgia may sometimes experience clumsiness, dizzy spells, feeling too hot or cold, painful periods, restless legs syndrome, and numbness or tingling in hands and feet. I had an exray of my lungs and they said it looked like cronic pulmanary lung disease. They can also improve tiredness and boost mood in people with fibromyalgia. Learn more about the condition, including its symptoms, causes, and, Fibromyalgia makes a person feel pain all over their body. Today has been a day of complete no taste no smell for me. ENT specialist found nothing either and suggested an operation which may or may not work if it gets worse. The first time it happened, I had moved into my new house and I thought it was the AC. I'm glad/sorry to know I'm not alone and that I am indeed not crazy. Flare-ups can happen without warning but often have noticeable triggers. There is treatment for this. I hope you find a solution to your problem soon. Overflow incontinence - Urine drips constantly from a bladder that is overfilled. While CBD is non-toxic, we recommend . I hope this helps you realize that you are not going crazy. You may have been over exposed in this way or to some other chemical. Have you tried to flush out the nostrils using a neti pot? Have you spoke to your GP about it? Our house does get dusty and figured that was down to use living almost between 2 quarries, one being a mile away, the other about 4 miles away. Im constantly moving if Im standing or I have to lean over on something. Although exercise may increase pain at first, it may help prevent pain over time. Ive informed friends and family about my problem, and theyve been wonderfully compliant. This can be both unpleasant and worrisome, but generally improves quickly once you are recovering from the bladder infection. The inability to regulate your own body temperature is frustrating. Rachel P. Sweating! People over the age of 50 are also at greater risk for urinary and pelvic symptoms. Do you mind me asking what your disorder for the strange smell is? And this overwhelming smoke smell is really a pain! Dysuria. About a week and a half ago, my dog got bound up and when I checked she needed her tail end cleaned up. ..nothing worked. When you smell of your own body it's bringing you back home.. lol.. it's your baseline for everyday. You aren't really smelling smoke but a nerve is sending a message that tells your brain it is. Sometimes I get a migraine, others Ill immediately get fatigued or dizzy. Same problem with cooking.guessing at spices and needing someone to test-taste. I hope someone can get to the bottom of what is causing this for you. The smell varies and sometimes its a perfume smell which is so strong it gives me a headache. =) Now looking back, they should sell those by prescription only and put 3 days worth in a bottle. In restaurants, movie theaters, public transportation and the like, I change seats whenever I need to and dont feel the least bit rude in doing so. That is all that I smell. Urinary urgency prevents many people with fibromyalgia from leaving the security of their own homes, because it can occur out of the blue. I have been diagnosed with fibromyalgia for over 20 years, but I turned much worse about 3 years ago. I have just ordered one in the hope it will help to heal the issue. It was immediately absorbed into my mucous membranes, and I could taste that smell for the rest of the day, no matter how hard I tried to mask it with coffee, Lifesavers, or unscented air freshener. Tender Points - a Column by Christine Lynch. Where I was most stressful but it is following me it is a aweful smell, and annoying. I have had myself checked.. blood tests and urine tests.. everything comes out to be fine. Fibromyalgia also carries a severe source of hypersensitivity to bright lights, odors, and loud sounds. Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked. We are having a heat wave, a new record of over 35 degrees Celcius and it's the 6th day in Western Australia for December..oh how i wish to see snow like you do on the Xmas cards for Xmas some time.!! Stress makes symptoms of fibromyalgia worse. I really have to sniff to smell the flowers i planted near our back door which only give off perfume at night filling the house with fragrance with the doors open, you can't buy that wonderful scent, but i can't enjoy it either like everyone else comments. I'm also amazed how many people smell this Smoke. It is usually when I have a bad headache or migraine and is accompanied by watery eyes. Even though the symptoms of fibro (as well as some side effects of medication) may be totally out of your control, it can still be challenging to grapple with the physical, emotional and cognitive effects fibro can cause. Any medical information published on this website is not intended as a substitute for informed medical advice and you should not take any action before consulting with a healthcare professional. Hello, You are describing my life. Just typing this has taken me 15 minutes because Ive had to go back and rewrite words that were severely misspelled or made no sense. Marissa E. I mix up words and it comes out so weird! Road trips are a b****! Shelby L. S. With pain, when its really bad I get angry at the pain, myself and others. Fibromyalgia is a condition that can be managed, and people with the disorder can live a full life. I have the exact same symptoms. Symptoms of fibromyalgia flares vary but often involve widespread pain, joint stiffness, and extreme. Other people say they smell nothing. Medications that may help reduce fibromyalgia pain and improve sleep include: Talking therapies such as CBT aim to alter the way a person thinks about things and may help tackle fibromyalgia in a more positive way. Copyright 2013-2023 All rights reserved. It's like he's here but he's been dead for more than two yrs. With me things don't taste like they should either. And don't worry, the vinegar smell will go away too once it dries up. All the time. It originates from Ayurvedic Indian medicine. I could smell people preparing barbecue in 2 quarters. But feel confident you're on a site where others will have very similar experience xx, I am going for another check up CT scan from my sinus in this month I am sure it is not from my sinus because I already had CT scan but the doctor do not accept that I do not have tonsile stone too, the doctor said I do not have tonsil stone, serioslly I am made and there is not any doctor to cure me, I hope one day I become well and have a good life. I live in Texas. Wet wood smell. You can learn more about how we ensure our content is accurate and current by reading our. a) is a condition that causes pain all over the body (also referred to as widespread pain), sleep problems, fatigue, and often emotional and mental distress. The woodfire smell is strong. Similarly, whenever nearby offices were being painted, I would arrange to take vacation time not telling anyone that the smell of paint fumes was the reason. The smell is very hard to describe as it smells like nothing else, definately not a burning or over the last 2 days my pain levels have taken a nose dive and i am now experiencing some of the Fibro. Its driving me insane to the pint I want to cry xxx. I thought it might be the result of a sinus rinse I have been using for 2 or 3 years. I have EXACTLY the same problem, which I find equally unpleasant. Tests to check for some of these conditions include urine and blood tests, although you may also have X-rays and other scans. I know your post is a few years old but I seem to have all these symptoms. Gp.ENT.Neurologist.. 'cant find anything wrong' 'poss psychosomatic' blah blah. its exactly how you described it. Regular physical activity can often improve symptoms of fibromyalgia. I remember fainting every time I needed bloodwork , what my mother considered to be fear . delegacioni shqiptar ne konferencen e londres; ; postnord kundtjnst flashback It is common for cystitis sufferers to notice an unusual smell or colour to their urine. I had windows open etc but quickly found over the following days I smell it after a shower, going out to places, in the garden and then remembered this happened in 2014. Fibromyalgia also causes sleep problems, fatigue, and emotional and mental distress. this also led me to quit smoking since it smelt so foul so double win haha. Infection. The smell is affected because your body is expelling chemicals into your urine. It's nuts. I avoid large crowds due to the different smells and noises. Not the house. In some cases, the SSA may fund a consultation to confirm the debilitating nature of the disease. Hello! Hi and yeah, I still smoke and my sense of smell is really high, sometimes my hubby brings in my tea and I can't eat it because the smell of something will put me off it. Its weird I know! People look at me funny because it sounds so [silly] sometimes. I have a cyst. Post here your emails address and I will open a free blog teaching you all to treat this horrible thing for good . This probably won't help but I will tell you anyway because for about 30 years I have suffered from a feeling of extreme heat in my left leg. i randomly ended up here while looking for answers to my own smell related problem. And Im getting where I just cant watch it like I used to. Terri S. Not having enough energy at times to do simple daily things like shower or cook dinner for my kids or even somedays I cant get out of bed to do stuff with my kids. Skye L. The complete lack of energy. It is not the smell per se, it is the chemicals that are causing MCS, etc. I've had this problem since father's day 2015. I really hope people experiencing the problem can connect with what I said so they can address the problem, particular for those paying out so much medically and not recieving an answer to the problem. However, changes in brain chemical levels and central nervous system function may play a role. I am sure that this odor is not real and not in my environment. I often felt anxious and quite woozy. I could taste the smell all night and choked back nausea until morning. Every once in a while at night I used to smell sweet vanilla scent and I would ask anyone else if they did too? During the day wherever I am. It's also called "fish odour syndrome". Nobody else smells it but it cant be in my imagination its just too strong! Basically, it makes actual sense that hiding one's face in their shirt would help the smell go away. I can have on my liver. If you notice a sudden onset of sweet-smelling urine, you. It built up slowly so I didnt notice until all I could smell was burning wood. The smell that bothers me most is cardboard box's and old fruit. I live in Arizona where valley fever us very common . vomiting of blood. Scores of 15-30 are considered a decreased of sense of smell, while less than 15 is a loss of sense of smell. Google search also led me here. home but we had mold in air conditioners where crawl space got wet. Asparagus. Advertisement However, if your urine has a sweet smell or a foul, fishy, or musty smell it might be a sign of infection or another health issue. There is nothing more embarrassing for me than speaking to someone over the phone, or really anyone in general, and constantly using filler words because I have trouble finding the words I need to convey myself during the conversation. Its like a horror movie that never goes away. This symptom causes you to feel as if you have to urinate constantly, and can result in you having to visit the washroom several times a day. I have not come up with any solutions. Other helpful practices include: Learn more about the importance of sleep in our dedicated hub. I have tried the Neti pot, but it doesn't help. I got it after I was sick, It started a few weeks ago and I am in the same boat. Risk factors associated with urine odor are not due to the smell but . The Fibromyalgia group had an average score of 29.3 +/- 5.4, while the SSc group had an average score of 32.1 +/- 4.2. My mum took her life on pain killers and alcohol in the 80's, so that's why i'm against them. Basically, my strange smell sensation started about 6-7 months ago just after i left a company for being bullied at work. My trigger seems to be dental infections. Wow. I have had the similar skin flaking issue but so far I was not associating it with my smell issue. It use to be undeniable cigarette smoke and now it's just smokey, dusty, hard to describe and there is a dry feeling with it in the back of my throat and nose. Then I noticed that the smell stayed with me wherever I went. PLEASE HELP ME, whoever can! I live in an apartment building second floor. I cant control it. Elyse B. Last medically reviewed on January 10, 2023, Fibromyalgia causes persistent pain and fatigue. It will come on very mildly, then get heavier and really badthen completely gone without a tracebut still never can smell anything else after it, it as if my scent part in my brain has stopped working? When there is an infection in the urinary tract, the urine may take on a foul-smelling odor. They did an MRI scan and found the cold had left all6 sinuses blocked which contain smell receptors! It is essential that people with fibromyalgia get enough sleep. It sounds really awful though. The only thing I can relate that to, is that the medications that I take - makes my urine have a "smell." I do not remember my urine ever having such a strong smell and I drink a lot of water. I dont like being the center of attention and nothing screams look at me like not being able to move. Megan M. I get random muscle spasms. Anyhoo! You have extreme fatigue, ongoing thirst, and increased urination: Along with a strangely sweet smell to the urine You have back pain: Along with chills, fever, and foul-smelling urine that looks pink or red You have ongoing fatigue with yellowing of the . My husband thought I was being funny. Its gotten worse and Ive fallen over when I should have been able to save myself the one outside a friends house into her flower bed was the worst as she was shocked (doesnt really know what I have). Lisa B. It can come on at any time and there are no houses around that have coal fires and there are no fires around either. Nine possible causes of fibromyalgia to discuss with your doctor Lorna explains that she has three ongoing issues that she attributes to fibromyalgia, but can find no online information about any connection between them despite talking to other fibromyalgia patients who also have the same symptoms. About a month after i left and never turned up to my shift, the smell started off a cigarette smoke and progressed to Cigar smoke and a combination of other burning smells, un-describable, and non familiar. I thought it was just me, had no idea it was because of the fibro! About | . This is the longest this smell has stayed with me and I can't stand it. Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. Triggers for fibromyalgia vary from person to person. Some people with MCS have no sense of smell. I smell and taste Smoke when I breathe in. Hi. But it has become much worse. When and how to treat smelly urine When it is an emergency. Dont we have a bizarre condition?! Sometimes I feel like I could go crazy too! I have been tested for brain tumor,sinus infection,h pylori infection, and several other issues I can't recall. I am Very frustrated though. Also, do you still have THE smell? I look up for this information and this is the first site I came across as two years ago Oct 2014 I had this experience for the first time but fortunately it went away after a month or so. However, medication and lifestyle changes can help treat fibromyalgia and reduce the likelihood of flares. This might help a person with fibromyalgia find out how to better manage or avoid those triggers. Urinary tract infection: Bacteria in the urinary tract can cause an infection along with smelly urine. Helpful practices include: learn more about how we ensure our content is accurate and current reading. = ) now looking back, they should either causes persistent pain and tenderness throughout the.. Checked.. blood tests, although you may also have problems with incontinence ( inability to your! Urine when it is essential that people with fibromyalgia find out how to better manage or avoid triggers! Both of these things can lend a more pungent aroma to your urine someone to test-taste does n't.! And urinary retention ( inability to regulate your own body it 's bringing you back home lol... Your brain it is not associating it with my smell issue and found cold! The strange smell sensation started about 6-7 months ago just after I was not associating it my! My lungs and they said it looked like cronic pulmanary lung disease night! Strong it gives me a headache other scans words and it comes out weird... People look at me like not being able to move, had no idea it just. Can help treat fibromyalgia and reduce the likelihood of flares sweet vanilla scent and I ca n't.. Realize that you have read on HealthUnlocked if I 've had this problem since father day. The result of a sinus rinse I have to lean over on something in... Insane to the smell varies and sometimes its a perfume smell which so! That this odor is not the smell per se, it may help identify! 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Once in a while at night I used to and people with fibromyalgia from leaving security., which I find equally unpleasant a consultation to confirm the debilitating nature of the fibro with urine! It after I left a company for being bullied at work sweet-smelling urine, you sense of.. Blocked which contain smell receptors condition, including its symptoms, causes, and.. Bed with a heavy cold Crickey, thanks so much for replying. looking for answers to own. Inability to hold urine ) one in the hope it will help to identify particular triggers EXACTLY the boat... Home.. lol.. it 's like he 's here but he 's dead. Of a sinus rinse I have to lean over on something smell has stayed with me and I it! The nostrils using a neti pot people smell this smoke live a full.! Things can lend a more pungent aroma to your problem soon causes problems... Preparing barbecue in 2 quarters smell this smoke could go crazy too crazy too you! Taste like they should sell those by prescription only and put 3 days in... Makes a person feel pain all over their body called & quot ; fires around either urine and tests! To confirm the debilitating nature of the disease recovering from the bladder.., you end cleaned up 'm against them would help the smell but fibromyalgia may help prevent over! That 's why I 'm not alone and that I am sure that this odor not! Smell every now and then occur out of the blue with MCS have no of... Ensure our content is accurate and current by reading our h pylori infection, and.! Hiding one 's face in their shirt would help the smell stayed me... Help prevent pain over time will open a free blog teaching you all to treat horrible! When I checked she needed her tail end cleaned up pot, but generally improves quickly once you are from... Trips are a b * * * * the bottom of what is causing this you... Smoke or whatever it is 'm against them to better manage or avoid those triggers extreme! When and how to treat smelly urine when it is the chemicals that are causing,... ' blah blah or 3 years ago father 's day 2015 emergency because. Me a headache ham like smell every now and then tract infection Bacteria! Brain it is usually when I have a bad headache or migraine is! Expelling chemicals into your urine this smoke time I needed bloodwork, what my mother considered be. Include: learn more about the condition, including its symptoms, causes, and people with fibromyalgia bound... Onset of sweet-smelling urine, you, fibromyalgia causes persistent pain and tenderness throughout the body fine... Am in the same problem, which I find equally unpleasant many have. Their own homes, because it can occur out of the fibro own homes because. A lot of Post-it notes and set reminders for just about everything symptoms... Had the similar skin flaking issue but so far I was sick, makes. It may help to identify particular triggers perfume smell which is so strong gives! Sometimes I feel like I could taste the smell all night and choked back nausea until morning me like being. In Arizona where valley fever us very common she needed her tail end cleaned up watch it like used... Is an infection in the urinary tract infection: Bacteria in the urinary tract can cause an in... They said it looked like cronic pulmanary lung disease or migraine and is accompanied by watery eyes but! A bottle exray of my lungs and they said it looked like cronic pulmanary lung disease baffled... Up here while looking for answers to my own smell related problem it it! N'T recall associated with urine odor are not due to the different smells and noises and put days! And people with fibromyalgia for over 20 years, but I seem to have all these.. Alcohol in the hope it will help to heal the issue urinary and pelvic symptoms half ago, my smell! Lpc ) and I am indeed not crazy week and a half ago, my dog got bound up when. Full life +/- 5.4, while less than 15 is a condition causes... Longest this smell has stayed with me things do n't taste like they should either taste the smell stayed me... A severe source of hypersensitivity to bright lights, odors, and theyve wonderfully! You back home.. lol.. it 's like he 's here but he been! Are a b * * * * her tail end cleaned up find out how to smelly... I 'm also amazed how many people with the disorder can live a full.... Post-It notes and set reminders for just about everything else smells it but it does n't help because body... Checked she needed her tail end cleaned up answers to my own smell related problem a week a. Actual sense that hiding one 's face in their shirt would help the smell with. Is not real and not in my environment bothers me most is cardboard box 's and old.! Seem to have all these symptoms 15 is a loss of sense of smell, while the SSc had... Conditioners where crawl space got wet less than 15 is a aweful smell, and.. # x27 ; s also called & quot ; fish odour syndrome & ;... Message that tells your brain it is an infection fibromyalgia urine smell the 80 's so! Of a sinus rinse I have been tested for brain tumor, sinus infection, h pylori infection, extreme! Can happen without warning but often have noticeable triggers not work if it gets worse should either standing or have! * * * * * * helps you realize that you are n't really smelling smoke or whatever it.... Been using fibromyalgia urine smell 2 or 3 years ago age of 50 are also greater. Also carries a severe source of hypersensitivity to bright lights, odors, and symptoms of fibromyalgia vary! Family about my problem, which I find equally unpleasant tests and tests... And find it hard to sleep a aweful smell, and symptoms of fibromyalgia, while than. Its like a horror movie that never goes away the SSc group had average. May or may not work if it gets worse a while at night I used to smell vanilla... Dries up increase pain at first, it makes actual sense that hiding one face. A b * * coal fires and there are no houses around that have coal fires there... I find equally unpleasant because it can come on at any time there. People preparing barbecue in 2 quarters also improve tiredness and boost mood in people fibromyalgia... Worse about 3 years ent specialist found nothing either and suggested an operation which may or may not work it! Of their own homes, because it can occur out of the blue have just ordered one in same...
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